"I would like you to e-meet Scott Sullivan and hear his story because it is truly inspirational. When Scott was diagnosed and told MND has no known cause or cure and that the average life expectancy for those with MND was 27 months, he had less than a day of feeling sorry for himself then set about turning things around. Scott was only 38, married and had two small children.
Scott discovered that Government help for sufferers was almost non-existent and support for Queensland sufferers of MND just didn't exist. So he set about making a difference. Scott founded MND & Me, a charitable organisation with 3 objectives; ensure sufferers have at least basic living standards, provide funds for research and generate awareness of MND.
MND is a disease that occurs when the nerve cells (neurones) controlling the muscles that enable us to move around, speak, swallow and breathe fail to work normally. With no nerves to activate them, the muscles gradually weaken and waste. While some people can live a long time with MND, the average life expectancy is 2 to 3 years from diagnosis.
Scott discovered that Government help for sufferers was almost non-existent and support for Queensland sufferers of MND just didn't exist. So he set about making a difference. Scott founded MND & Me, a charitable organisation with 3 objectives; ensure sufferers have at least basic living standards, provide funds for research and generate awareness of MND.
MND is a disease that occurs when the nerve cells (neurones) controlling the muscles that enable us to move around, speak, swallow and breathe fail to work normally. With no nerves to activate them, the muscles gradually weaken and waste. While some people can live a long time with MND, the average life expectancy is 2 to 3 years from diagnosis.
Scott has spearheaded MND & Me to raise almost $1m in two years and has generated tremendous publicity to ensure all objectives are met. Scott still has quality time for family and is working through his bucket list. Scott was honoured with a Pride of Australia Medal last year."
I was lucky enough to personally meet Scott Sullivan earlier this year. I was so inspired by his positivity and outlook on life, despite his battle with MND.
Along with the above email, was an invitation to participate in Scott's latest initiative to raise funds for Motor Neurone Disease, Million Metres for MND. It is a 10km swim, completed either individually or as a team, on Sunday December 2. Together, all teams and individuals will swim more than one million metres, creating publicity and bringing awareness to the cause.
If you would like to help us reach our goal of $10,000 for MND, please make a donation to our team, by visiting this link http://www.everydayhero.com.au/just_keep_swimming_4.
Ellie xo
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